Supporting Aussie Kids with Kabuki Syndrome (SAKKS)

Support group details

Group Name
Supporting Aussie Kids with Kabuki Syndrome (SAKKS)
Group Description
Kabuki Syndrome is a rare genetic condition which affect an individuals development. SAKKS as a group provides information on the condition, comfort and support.
Who can Join
People with Kabuki syndrome, their families and those who support them.
Contact hours
At a reasonable time depending on the contact's timezone.
Where we meet
Town/Suburb
Postcode
Services
SAKKS has a members only family group to contact other families and share new knowledge. It is free to join. We offer 3 day retreats, educational seminars and family days.
More Info
Information, external links to genetics departments and research as well as links to medical information. SAKKS currently has over 200 members from every corner of the globe.
Group Focus
To increase awareness and aid in earlier diagnosis of Kabuki Syndrome.
Area serviced
Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
Phone contact
Contact the group by email

Email Contact