Support group details
- Group Name
- Supporting Aussie Kids with Kabuki Syndrome (SAKKS)
- Website
- www.sakks.org
- Group Description
- Kabuki Syndrome is a rare genetic condition which affect an individuals development. SAKKS as a group provides information on the condition, comfort & support.
- Who can Join
- People with Kabuki syndrome, their families & those who support them.
- Contact hours
- At a reasonable time depending on the contact's timezone.
- Where we meet
- Town/Suburb
- South Australia
- Postcode
- 8888
- Services
- SAKKS has a members only family group to contact other families and share new knowledge. It is free to join. We offer 3 day retreats, educational seminars and family days.
- More Info
- Information, external links to genetics departments and research as well as links to medical information. SAKKS currently has over 200 members from every corner of the globe.
- Group Focus
- To increase awareness & aid in earlier diagnosis of Kabuki Syndrome.
- Area serviced
- Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
- Phone contact
- contact by email
- Contact the group by email