Syndromes Without A Name (SWAN) Australia

Support group details

Group Name
Syndromes Without A Name (SWAN) Australia
Group Description
SWAN Australia is a not for profit charity which provides information and support to parents/carers who do not have a genetic diagnosis for their child's/children's medical condition. We advocate for better resources and more funding into research to assist more children get a genetic diagnosis.
Who can Join
Anyone approved by the SWAN committee Ideally parents/carers and their friends and family and medical and educational professionals
Contact hours
Monday - Friday, 9.00 am - 5.00 pm. If the matter is urgent outside these times, please leave a message.
Where we meet
PO Box 390
Phone support Email & online support Meetings Networking opportunities Newsletter Information kits Fact sheets Peer support Guest speakers Seminars Workshops Friendship Social outings Personal or other advocacy Social action
More Info
We welcome new members.
Group Focus
Parents/Carers who do not have a genetic diagnosis for their child's medical condition or parents/carers who have a child with an extremely rare condition for which there is no support group.
Area serviced
Phone contact
0404 280 441
Contact the group by email

Email Contact