Syndromes Without A Name (SWAN) Australia

Support group details

Group Name
Syndromes Without A Name (SWAN) Australia
Group Description
SWAN Australia is a not for profit charity which provides information and support to parents/carers who do not have a genetic diagnosis for their child's/children's medical condition. We advocate for better resources and more funding into research to assist more children get a genetic diagnosis.
Who can Join
Anyone approved by the SWAN committee Ideally parents/carers, friends, professionals.
Contact hours
Monday - Friday, 9.00 am - 5.00 pm. If the matter is urgent outside these times, please leave a message.
Where we meet
phone & email support
Phone, Email & online support. Meetings. Networking opportunities. Newsletter, Information kits, Fact sheets, Peer support. Guest speakers, Seminars, Workshops, Friendship Social outings. Personal or other advocacy Social action.
More Info
We welcome new members.
Group Focus
Parents/Carers who do not have a genetic diagnosis for their child's medical condition or who have a child with an extremely rare condition for which there is no support group.
Area serviced
Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
Phone contact
0404 280 441
Contact the group by email

Email Contact