Pierre Robin Australia

Support group details

Group Name
Pierre Robin Australia
Group Description
Pierre Robin Australia (PRAISE) is a not for profit community health charity, providing Information, Support and Education to those affected by Pierre Robin Sequence/Syndrome (PRS) and associated conditions. Our group is run by parents of children with the condition, and offers support based on real world experience. As the only registered organisation for Pierre Robin within Australia, PRAISE proudly works in support of our members to empower them in managing and living with the condition.
Who can Join
Anyone looking for support, information, and an outlet to share their experience of Pierre Robin.
Contact hours
Please phone at a reasonable hour. Email and facebook support 24/7. Please note that the facebook group is a closed group - an admin will accept your join request as soon as possible.
Where we meet
Information, Education and Support. Support by phone, email, and facebook. Where possible we can put you in contact with people in your local area. Hospital visits available in some areas.
More Info
Please note that we are NOT medical professionals and information shared is based on personal experience only. Each child is an individual with individual needs. Please consider your own circumstances, and should you require more specific information, please refer to your child's own medical team.
Group Focus
Pierre Robin members receive the support they need today & gain friendships they’ll keep well into tomorrow.
Area serviced
Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
Phone contact
Fiona - 0400 766 034
Contact the group by email

Email Contact