Pierre Robin Australia

Support group details

Group Name
Pierre Robin Australia
Group Description
Pierre Robin Australia (PRAISE) is a not for profit community health charity, providing Information, Support & Education to those affected by Pierre Robin Sequence/Syndrome (PRS) & associated conditions. Our group is run by parents of children with the condition & offers support based on real world experience. As the only registered organisation for Pierre Robin within Australia, PRAISE proudly works in support of our members to empower them in managing & living with the condition.
Who can Join
Anyone looking for support, information & an outlet to share their experience of Pierre Robin.
Contact hours
Please phone at a reasonable hour. Email and facebook support 24/7. Please note that the facebook group is a closed group - an admin will accept your join request as soon as possible.
Where we meet
Support by phone, email & Facebook. Where possible we can put you in contact with people in your local area. Hospital visits available in some areas.
More Info
Please note that we are NOT medical professionals & information shared is based on personal experience only. Each child is an individual with individual needs. Please consider your own circumstances & should you require more specific information, please refer to your child's own medical team.
Group Focus
Pierre Robin members receive the support they need today & gain friendships they’ll keep well into tomorrow.
Area serviced
Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
Phone contact
Fiona - 0400 766 034
Contact the group by email

Email Contact