Support group details
- Group Name
- Australian Chapter of the Batten Disease Support and Research Assoc. Inc. (BDSRA)
- Website
- www.battens.org.au/
- Group Description
- Helping families to overcome their fears & uncertainties; to hopefully find an acceptance & ultimately to be grateful for the positives.
- Who can Join
- by membership
- Contact hours
- Where we meet
- Town/Suburb
- Based in NSW
- Postcode
- 8888
- Services
- A volunteer based organisation with common goals to provide information & support to those affected by Batten Disease.
- More Info
- Group Focus
- Batten disease (Neuronal Ceroid Lipofuscinoses) is an inherited disorder of the nervous system that usually manifests itself in childhood.
- Area serviced
- Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
- Phone contact
- Contact the group by email