Australian Chapter of the Batten Disease Support and Research Association Inc. (BDSRA)

Support group details

Group Name
Australian Chapter of the Batten Disease Support and Research Association Inc. (BDSRA)
Group Description
Annual membership $25 per individual or family
Who can Join
Contact hours
Where we meet
Town/Suburb
Based in NSW
Postcode
Services
Helping families to overcome their fears and uncertainties; to hopefully find an acceptance and ultimately to be grateful for the positives.
More Info
The BDSRA is a volunteer based organisation with common goals to provide information and support to those affected by Batten Disease.
Group Focus
Batten disease (Neuronal Ceroid Lipofuscinoses) is an inherited disorder of the nervous system that usually manifests itself in childhood.
Area serviced
Phone contact
info AT bdsraaustralia.org
Contact the group by email

Email Contact