Sotos Syndrome Australasia

Support group details

Group Name
Sotos Syndrome Australasia
Group Description
Connects and provides support for families, carers and individuals affected by Sotos Syndrome.
Who can Join
Complete online application to become a member.
Contact hours
Where we meet
facebook group
Assists people living with Sotos Syndrome to live independently, find employment and connect with other people or families affected by Sotos Syndrome.
More Info
To increase awareness, understanding and acceptance of Sotos Syndrome within the medical community, education sector and general community.
Group Focus
Sotos Syndrome is a rare genetic disorder characterised by excessive physical growth during the first years of life
Area serviced
Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
Phone contact
info AT
Contact the group by email

Email Contact