Support group details
- Group Name
- Sotos Syndrome Australasia
- Website
- sotos.org.au/
- www.facebook.com/sotossyndromeaa
- Group Description
- Connects and provides support for families, carers and individuals affected by Sotos Syndrome.
- Who can Join
- Complete online application to become a member.
- Contact hours
- Where we meet
- facebook group
- Town/Suburb
- Postcode
- 8888
- Services
- Assists people living with Sotos Syndrome to live independently, find employment and connect with other people or families affected by Sotos Syndrome.
- More Info
- To increase awareness, understanding and acceptance of Sotos Syndrome within the medical community, education sector and general community.
- Group Focus
- Sotos Syndrome is a rare genetic disorder characterised by excessive physical growth during the first years of life
- Area serviced
- Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
- Phone contact
- info AT sotos.org.au
- Contact the group by email