Support group details
- Group Name
- Rare Voices Australia
- Website
- rarevoices.org.au/
- www.facebook.com/RareVoicesAustralia
- Group Description
- A dedicated group of individuals, each of whom has first-hand experience both of living with a rare disease & of working in the rare disease sector. Rare Voices Australia works with many stakeholders all with an interest in rare diseases.
- Who can Join
- Anyone with an interest in rare diseases.
- Contact hours
- Office: Mon to Fri 9:00am - 5:00pm
- Where we meet
- Phone or email for details of support groups.
- Town/Suburb
- Victoria
- Postcode
- 8888
- Services
- Providing Advocacy, Education, Research, link to Support Groups.
- More Info
- We also partner with other national organisations that provide trusted health & research information, as well as ethical principles.
- Group Focus
- Providing link to rare disease support, advocacy, education & research.
- Area serviced
- Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
- Phone contact
- 0497 003 104
- Contact the group by email