A dedicated group of individuals, each of whom has first-hand experience both of living with a rare disease & of working in the rare disease sector. Rare Voices Australia works with many stakeholders all with an interest in rare diseases.
Who can Join
Anyone with an interest in rare diseases.
Office: Mon to Fri 9:00am - 5:00pm
Where we meet
phone or email for details of support groups
Providing Advocacy, Education, Research, link to Support Groups.
We also partner with other national organisations that provide trusted health & research information, as well as ethical principles.
Providing link to rare disease support, advocacy, education & research.