The mission of the Pallister-Hall Syndrome Support Hub is to educate and inform the public, and to support and facilitate contact between Pallister-Hall Syndrome patients, their families, carers, medical providers, allied health professionals and interested researchers worldwide by the establishment and provision of a mechanism for the timely acquisition and effective distribution and disseminations of information, materials and resources that are clear, understandable, easy to read and in plain English.
Who can Join
Open to patients, their families, carers, medical providers, allied health professionals and interested researchers.
Australian business hours only - Monday to Friday, 8.30am - 4.30pm. Messages can be left online via Facebook anytime and will be answered as soon as possible.
Where we meet
Email and online support. Phone support by appointment only. Published Patient Resource Guide. PHS] is an extremely rare genetic disorder that may be apparent at birth; it is a multiple congenital anomaly syndrome, not a disease and it affects all races of people.
Prefer that contact be made via email or online first to organise a suitable time for an appointment.
Established to encourage, raise & advance the public awareness of Pallister-Hall Syndrome.