Pallister-Hall Syndrome (PHS) Support Hub

Support group details

Group Description: The mission of the Pallister-Hall Syndrome Support Hub is to educate and inform the public, and to support and facilitate contact between Pallister-Hall Syndrome patients, their families, carers, medical providers, allied health professionals and interested researchers worldwide by the establishment and provision of a mechanism for the timely acquisition and effective distribution and disseminations of information, materials and resources that are clear, understandable, easy to read and in plain English.

Who can Join: Open to patients, their families, carers, medical providers, allied health professionals and interested researchers.

Contact hours: Australian business hours only - Monday to Friday, 8.30am - 4.30pm. Messages can be left online via Facebook anytime and will be answered as soon as possible.

Services: Email and online support. Phone support by appointment only. Published Patient Resource Guide. PHS] is an extremely rare genetic disorder that may be apparent at birth; it is a multiple congenital anomaly syndrome, not a disease and it affects all races of people.

More Info: Prefer that contact be made via email or online first to organise a suitable time for an appointment.

Group Focus: Established to encourage, raise & advance the public awareness of Pallister-Hall Syndrome.