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Support group details
- Group Name
- Noonan Syndrome Awareness Association (NSAA)
- Group Description
- The NSAA wants you to know you're not alone. We know how troubling, uncertain and fearsome the diagnosis of Noonan Syndrome can be for you or your loved ones.
- Who can Join
- people with noonan syndrome, parents/carers, family
- Contact hours
- Where we meet
- social get-togethers, Melbourne, WA, NSW
- open to Australian & New Zealand families only
- Facebook page for members, research, events.
- More Info
- The NSAA works to raise awareness of Noonan Syndrome (NS) in Health Professionals and the community.
We provide resources and support for people with NS.
- Group Focus
- A genetic condition that affects many areas of the body.
- Area serviced
- Phone contact
- Contact the group by email