Marfan Association Queensland

Support group details

Group Name
Marfan Association Queensland
Group Description
A volunteer run support group for people & families affected by Marfan syndrome by sharing experiences & information related to diagnosis, management & treatment.
Who can Join
Anyone with Marfan Syndrome, their families, carers, professionals & interested others. Also supporting interstate enquiries.
Contact hours
Email is preferable to arrange a mutually convenient time to speak.
Where we meet
Gold Coast & Brisbane based, face-to-face annually. Phone for more details.
Brisbane, Gold Coast
Quarterly meetings. Email & online support. Newsletters twice a year. Fact sheets Library.
More Info
Further medical information can be gained from the Marfan Clinic at the Prince Charles Hospital, Brisbane from Michael Baldini, the clinical nurse consultant. Helping promote research & awareness for Marfan Syndrome.
Group Focus
Sharing experiences & information related to diagnosis, management & treatment of Marfan Syndrome.
Area serviced
Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
Phone contact
Contact the group by email

Email Contact