Marfan Association Queensland

Support group details

Group Name
Marfan Association Queensland
Group Description
Our three main aims are to: Support families affected by MFS by sharing experiences & information related to its diagnosis & treatment. Raise general awareness as, if left undiagnosed, MS can lead to life-threatening health issues. Marfan is an inherited disorder of the connective tissue due to a gene mutation. Abnormalities may develop in different parts of the body including the skeleton, eyes, lungs, heart & blood vessels. The syndrome may be first diagnosed in children, teenagers or adults. Approx 1 in 10,000 men & women of all races & ethnic groups have Marfan Syndrome.
Who can Join
Anyone with Marfan Syndrome, their families, carers, professionals & interested others. Also supporting interstate enquiries.
Contact hours
Email is preferable to arrange a mutually convenient time to speak.
Where we meet
Gold Coast & Brisbane based, face-to-face annually. Phone for more details.
Town/Suburb
Brisbane, Gold Coast
Postcode
Services
Quarterly meetings. Email & online support. Newsletters twice a year. Fact sheets Library.
More Info
Further medical information can be gained from the Marfan Clinic at the Prince Charles Hospital, Brisbane from Michael Baldini, the clinical nurse consultant.
Group Focus
helping promote research & awareness for Marfan Syndrome
Area serviced
Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
Phone contact
Contact the group by email

Email Contact