Support group details
- Group Name
- Marfan Association Queensland
- Website
- www.marfanqld.org.au/
- www.facebook.com/marfanassocQLD
- Group Description
- A volunteer run support group for people & families affected by Marfan syndrome by sharing experiences & information related to diagnosis, management & treatment.
- Who can Join
- Anyone with Marfan Syndrome, their families, carers, professionals & interested others. Also supporting interstate enquiries.
- Contact hours
- Email is preferable to arrange a mutually convenient time to speak.
- Where we meet
- Gold Coast & Brisbane based, face-to-face annually. Phone for more details.
- Town/Suburb
- Brisbane, Gold Coast
- Postcode
- 8888
- Services
- Quarterly meetings. Email & online support. Newsletters twice a year. Fact sheets Library.
- More Info
- Further medical information can be gained from the Marfan Clinic at the Prince Charles Hospital, Brisbane from Michael Baldini, the clinical nurse consultant. Helping promote research & awareness for Marfan Syndrome.
- Group Focus
- Sharing experiences & information related to diagnosis, management & treatment of Marfan Syndrome.
- Area serviced
- Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
- Phone contact
- Contact the group by email