Gelastic Seizure Support Hub

Support group details

Group Description: The Gelastic Seizures Support Hub has been established to encourage, raise and advance the public awareness of gelastic seizures by informing and educating the public, gelastic seizure patients, their families, carers, attending specialists, medical practitioners, allied health professionals and other interested persons about this rare syndromal related neurophysical event, its causes, diagnostic features, clinical characteristics and treatment options.

Who can Join: Open to patients, their families, carers, medical providers, allied health professionals and interested researchers.

Contact hours: Australian Business Hours only - Monday to Friday, 9am - 5pm. Messages can be left online via Facebook anytime and will be answered as soon as possible.

Services: Email and online support Phone support by appointment only Published Patient Resource Guide

More Info: Prefer that contact be made via email or online first to organise a suitable time for an appointment.

Group Focus: Gelastic Seizures Pallister-Hall Syndrome (PHS) Hypothalamic Hamartomas (HH)