FAN – Friedreich Ataxia Network

Support group details

Group Name
FAN - Friedreich Ataxia Network
Group Description
FAN is a Queensland-based supportive information-sharing network of people affected by Friedreich Ataxia.
Who can Join
free membership - Friedreich Ataxia sufferers, their friends, family/carers.
Contact hours
Where we meet
email for more information
Town/Suburb
Brisbane or Gold Coast
Postcode
Services
Website. Social get-togethers & relevant presentations. Private Facebook group. It is a genetic disease that causes progressive damage to the nervous system.
More Info
We coordinate member information to ensure the maximum number of FAers have access to Brisbane's FA Clinic (run by RBWH). We also compile & maintain information relevant to FA & FAers on our website. We promote research, assist in clinical trials & assist in educating professionals about FA.
Group Focus
Principally Friedreich Ataxia but we have some members affected by other ataxias - AT and SCA.
Area serviced
Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
Phone contact
Contact the group by email

Email Contact