FAN is a Queensland-based supportive information-sharing network of people affected by Friedreich Ataxia.
Who can Join
free membership - Friedreich Ataxia sufferers, their friends, family/carers.
Where we meet
email for more information
Brisbane or Gold Coast
Website. Social get-togethers & relevant presentations. Private Facebook group. It is a genetic disease that causes progressive damage to the nervous system.
We coordinate member information to ensure the maximum number of FAers have access to Brisbane's FA Clinic (run by RBWH). We also compile & maintain information relevant to FA & FAers on our website. We promote research, assist in clinical trials & assist in educating professionals about FA.
Principally Friedreich Ataxia but we have some members affected by other ataxias - AT and SCA.
Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast