Support group details
- Group Name
- Cystinosis Support Group Australia
- Website
- www.cystinosis.com.au
- Group Description
- Our purpose is to provide information & support to families & friends living with Cystinosis as well as doctors & professionals throughout Australia.
- Who can Join
- anyone is welcome to contact us
- Contact hours
- Reasonable hours
- Where we meet
- Town/Suburb
- Postcode
- 8888
- Services
- Phone support Email support On-line support Information sheets Peer support Newsletters, Hospital visits when possible
- More Info
- Cystinosis is a metabolic disease characterised by an abnormal accumulation of the amino acid cystine in various organs of the body.
- Group Focus
- People associated & affected by the Cystinosis & Fanconi Syndrome.
- Area serviced
- Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
- Phone contact
- The Dodd Family (07) 4129 0079
- Contact the group by email