Cystinosis Support Group Australia

Support group details

Group Name
Cystinosis Support Group Australia
Group Description
Our purpose is to provide information & support to families & friends living with Cystinosis as well as doctors & professionals throughout Australia.
Who can Join
anyone is welcome to contact us
Contact hours
Reasonable hours
Where we meet
Phone support Email support On-line support Information sheets Peer support Newsletters, Hospital visits when possible
More Info
Cystinosis is a metabolic disease characterised by an abnormal accumulation of the amino acid cystine in various organs of the body.
Group Focus
People associated & affected by the Cystinosis & Fanconi Syndrome.
Area serviced
Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
Phone contact
The Dodd Family (07) 4129 0079
Contact the group by email

Email Contact