CJD Support Group Network

Support group details

Group Name
CJD Support Group Network
Group Description
The CJDSGN provides information and support to families who are caring for, or coming to terms with the loss of a loved one to CJD or other prion diseases. The CJDSGN is committed to providing resources to educate and inform family members and carers of patients, to facilitate informed decisions and provide best possible patient care. The CJDSGN also supports and assists people at increased risk of developing CJD by promoting an environment in health care settings where patients feel comfortable and confident of receiving equity of care when disclosing their at risk status.
Who can Join
Anyone affected by prion disease in Australia
Contact hours
24 hours
Where we meet
13 Araluen Place
Phone support Face to face meetings Information packages Advocacy Education program Annual national conference
More Info
The CJDSGN offers support, information and assistance for family members and friends of patients suffering with suspected CJD and other prion disease and for those at increased risk of developing CJD. The primary goal of the CJDSGN is to be part of your support system and assist you in anyway that we can.
Group Focus
Creutzfeldt-Jakob disease (CJD) and other prion diseases including FFI and GSS.
Area serviced
Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast
Phone contact
1800 052 466
Contact the group by email

Email Contact