CJD Support Group Network

Support group details

Group Description: The CJDSGN provides information and support to families who are caring for, or coming to terms with the loss of a loved one to CJD or other prion diseases. The CJDSGN is committed to providing resources to educate and inform family members and carers of patients, to facilitate informed decisions and provide best possible patient care. The CJDSGN also supports and assists people at increased risk of developing CJD by promoting an environment in health care settings where patients feel comfortable and confident of receiving equity of care when disclosing their at risk status.

Services: Phone support Face to face meetings Information packages Advocacy Education program Annual national conference

More Info: The CJDSGN offers support, information and assistance for family members and friends of patients suffering with suspected CJD and other prion disease and for those at increased risk of developing CJD. The primary goal of the CJDSGN is to be part of your support system and assist you in anyway that we can.

Group Focus: Creutzfeldt-Jakob disease (CJD) and other prion diseases including FFI and GSS.

Area serviced: Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast