Bardet-Biedl Syndrome Foundation – Online

Support group details

Group Name
Bardet-Biedl Syndrome Foundation - Online
Group Description
Dedicated to connecting families, providing resources & sharing information on research, therapies & care for BBS.
Who can Join
connect through facebook
Contact hours
Where we meet
Town/Suburb
Victoria
Postcode
Services
The Genetic Support Network of Victoria (GSVN) is a vibrant & active organisation committed to promoting the interests & well-being of people affected by genetic conditions.
More Info
Information
Group Focus
Bardet Biedl Syndrome is a rare genetic disorder with highly variable symptoms.
Area serviced
Phone contact
Contact the group by email

Email Contact