Support group details
- Group Name
- Bardet-Biedl Syndrome Foundation - Online
- Website
- www.gsnv.org.au/
- www.facebook.com/Genetic.Support/
- Group Description
- Dedicated to connecting families, providing resources & sharing information on research, therapies & care for BBS.
- Who can Join
- connect through facebook
- Contact hours
- Where we meet
- Town/Suburb
- Victoria
- Postcode
- 8888
- Services
- The Genetic Support Network of Victoria (GSVN) is a vibrant & active organisation committed to promoting the interests & well-being of people affected by genetic conditions.
- More Info
- Information
- Group Focus
- Bardet Biedl Syndrome is a rare genetic disorder with highly variable symptoms.
- Area serviced
- Phone contact
- Contact the group by email