Albinism Fellowship of Australia

Support group details

Group Description: The Albinism Fellowship of Australia (AFA) is a national, non profit organisation established in 2005. The fellowship is run by volunteers who all have been personally touched by albinism in some way. The AFA's key purpose is to provide support, education and fellowship to those with albinism, parents of children with albinism, as well as their families and friends. While the albinism community in Australia is only small, the AFA provides a united voice to encourage productive developments and support within business, government and media. Our mission is to: Provide fellowship within the Australian albinism community. Promote understanding of albinism to our stakeholders. Foster relationships with international albinism networks. Our vision is to facilitate universal understanding, acceptance and celebration of albinism in Australasia.

Who can Join: Anyone touched by albinism - people with albinism, family, friends, carers, health and education professionals.

Contact hours: Monday - Friday, 9 am - 5 pm, please ring at a reasonable time as we are fully staffed by volunteers.

Services: Information for people with albinism and their families Facebook page open to anyone touched by albinism Talks to general community and professional groups Biennial Conferences State-based gatherings Accurate portrayals of albinism in the media Merchandise

Group Focus: Albinism Oculocutaneous albinism (OCA) and Ocular albinism (OA)

Area serviced: Far North Qld, North Qld, Western Qld, Central Qld, Wide Bay, Sunshine Coast, Darling Downs West Moreton, Brisbane North, Brisbane South & Logan, Gold Coast